MEAction

Trial By Error: After Last Year’s Tub Talk, Here’s an Interview–Clothed–for #MEAction’s Podcast

13 January 2023 by David Tuller 1 Comment

By David Tuller, DrPH

The last time I was interviewed about my work, I was sitting in a bubble bath with the guy tossing questions at me. That was, of course, my appearance last April on Tub Talks with Damon, a web series in which my friend Damon Jacobs, a gay, sex-positive psychotherapist in New York City, conducts interviews from a unique vantage point. Being interviewed by Damon is a disarming experience, and a disrobing one.

It was fun! But once was enough–if not for me then for the viewing public.

Trial By Error: #MEAction’s Chronic Illness Survey; Patients’ Research Informs CDC’s Long-COVID Advice

15 June 2021 by David Tuller

By David Tuller, DrPH

New survey to assess links between chronic conditions

Jaime Seltzer, #MEActionâ€™s Director of Scientific & Medical Outreach, has been pretty busy lately. This week, she appeared on a panel at the World Health Organizationâ€™s Long COVID webinarâ€”alongside no less than the distinguished and always affable Professor Sir Simon Wessely. Seltzer has also just been named to the Independent Advisory Group for Cochraneâ€™s new exercise therapy review. And she recently launched, in cooperation with Dr Mady Hornig, an epidemiologist at Columbia University, the Chronic Illness Survey Adventure (Symptom Cluster Characterization in Complex Chronic Disease), an effort to examine possible links and overlaps between ME/CFS and long COVID, POTS, hEDS, and MCAS.

Trial By Error: The CDC’s Stakeholder Meeting

28 September 2020 by David Tuller

By David Tuller, DrPH

The US Centers for Disease Control held one of its occasional briefings for ME/CFS stakeholders last week. I was unfortunately busy during that time, but #MEAction has posted a useful account of what was discussed, which you can read here. The #MEAction account includes short, helpful descriptions of a number of CDC initiatives, including efforts involving possible links between long-term complications of Covid-19 and ME/CFS.