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Trial By Error: “Effort Preference”? WTF?

By David Tuller, DrPH When I was a young gay man in the 1980s (I’m 67), a common term for sexual orientation was “sexual preference.” This phrase always struck me as weird. Preference? The urges I felt were not a “preference.” Preference clearly implies a choice—as in, I prefer to live in the city rather …

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Trial By Error: More Debate About Treatment of Severe ME/CFS

By David Tuller, DrPH Last month, Jonathan Edwards, an emeritus professor of medicine at University College London and an advocate for patients with ME/CFS, published a statement on a pre-print server about managing the nutritional needs of patients with severe disease. (I wrote about it here.) A few days ago, a group of parents and …

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Trial By Error: New Paper Seeks to Reframe Poor Findings in CODES Trial of CBT for Non-Epileptic Seizures

By David Tuller, DrPH The CODES trial investigated cognitive behavior therapy (CBT) as a treatment for dissociative seizures (DS), a sub-category of what is now called functional neurological disorder (FND). The intervention was a course of CBT specifically designed to address the variety of factors presumed to be triggering the seizures. (I have previously critiqued …

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Trial By Error: Professor Edwards’ Take on Nutrition and Severe ME Cases

By David Tuller, DrPH Jonathan Edwards, a professor emeritus of medicine at University College London, has released a document involving the provision of care for people with severe ME, an issue at the core of some recent high-profile cases in England. The document, which Professor Edwards posted on a pre-print server, is called “Management of …

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Trial By Error: The Conversation Recycles Biopsychosocial Nonsense

By David Tuller, DrPH A new piece in The Conversation shows just how problematic it is when poorly done biopsychosocial studies claim to have documented that cognitive and/or behavioral therapies are effective—and when these questionable findings are published in high-impact journals. The headline of the article: “Success in treating persistent pain now offers hope for …

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Trial By Error: Some Things I Read This Week–Scathing “Effort Preference” Analysis; Kids with Long Covid; National Academies’ Long Covid Definition

By David Tuller, DrPH An in-depth pushback on “effort preference” When the U.S. National Institutes of Health’s long-delayed “deep phenotyping” study of a handful of ME/CFS patients was released earlier this year, the focus on a weird construct called “effort preference” sucked up all the attention–in part because the paper placed it front and center, …

Trial By Error: Some Things I Read This Week–Scathing “Effort Preference” Analysis; Kids with Long Covid; National Academies’ Long Covid Definition Read More »

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