ME/CFS

Trial By Error: Correctives from Putrino & Iwasaki (and Others) to the Long-Covid-Is-Psychosomatic Claims

By David Tuller, DrPH When the pandemic began, everyone involved in the ME, CFS, and ME/CFS domain assumed that there would be a wave of post-acute, prolonged complications, since every virus seems to leave in its wake a small but still significant number of people who report a range of non-specific symptoms. It was also …

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Trial By Error: My Article About the Life–and Preventable Death–of Maeve Boothby O’Neill

By David Tuller, DrPH Last week, Codastory.com published an article I wrote about Maeve Boothby O’Neill, a 27-year-old in Exeter, England, who died in October, 2021, from complications of ME. The specific cause appears to have been malnutrition. Despite being alerted to the seriousness of Maeve’s condition, the local hospital resisted appeals to insert a …

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Trial By Error: Double Talk on Mind-Body “Dualism” in the Journal of Psychosomatic Research?

By David Tuller, DrPH Proponents of the psychosomatic approach to ME and long Covid–as well as the broader range of so-called “functional” disorders and/or “medically unexplained symptoms”–routinely declare that those who disagree with them are engaging in what they dismissively refer to as mind-body “dualism.” The mind and body are not separate entities, they note, …

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Trial By Error: After Last Year’s Tub Talk, Here’s an Interview–Clothed–for #MEAction’s Podcast

By David Tuller, DrPH The last time I was interviewed about my work, I was sitting in a bubble bath with the guy tossing questions at me. That was, of course, my appearance last April on Tub Talks with Damon, a web series in which my friend Damon Jacobs, a gay, sex-positive psychotherapist in New …

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Trial By Error: Why is the Department of Veterans Affairs Using a 1988 Definition of Chronic Fatigue Syndrome?

By David Tuller, DrPH Even though the US Centers for Disease Control and Prevention in Atlanta is the country’s leading public health agency, other government entities are not always up-to-speed on the latest recommendations. That could explain why the Department of Veterans Affairs appears to be using a variation of the 1988 Holmes definition for …

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Trial By Error: Can Functional Neurological Disorder Be an Indication of Prion Disease?

By David Tuller, DrPH A recent article in the Journal of Neurology presents a twist on the issue of functional neurological disorder (FND). The article, which was published in September, is called “Functional neurological symptoms as initial presentation of Creutzfeldt‐Jakob disease: case series.” Creutzfeldt-Jakob disease is a prion disorder that leads to dementia and death, …

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