By David Tuller, DrPH
On Monday, I gave a Zoom-talk hosted by the Sheffield ME & Fibromyalgia Group on the new draft of ME/CFS clinical guidelines from UK’s National Institute of Health and Care Excellence. The draft rejected the GET/CBT treatment paradigm. I haven’t watched the video, but most likely one of my eyebrows is hopping up and down as I talk. Not sure why that happens!
Watch the video here.
I agree, their central ME/CFS plank has been dealt a considerable blow but there’s still a long way to go. Too many UK doctors believe in the BPS MUS approach that was founded on the (hopefully now historical) management strategy for ME, and patients across the UK continue to suffer in the most horrendous ways as a result. As the ME community knows the ins and outs of the gruesome game that has been played, it could now play a pivotal role in overturning this appalling construct and smashing it to smithereens.