By David Tuller, DrPH
Ryan Prior is a CNN journalist who told the story of his own ME/CFS diagnosis and illness in the 2015 documentary Forgotten Plague. (I’m interviewed in the film.) On Sunday, he told the story of a friend he met as a result of the film, and the choice she made last year to end her life in Switzerland through a legal process not available to her at home in Tennessee. I’ve included the first few paragraphs below.
My friend chose an assisted death in Switzerland. Her dying wish was to tell you why
By Ryan Prior
(CNN) Shortly after 11 a.m. on December 16, 2019, Cindy Siegel Shepler drew her last breath in a spartan room in Basel, Switzerland.
The 62-year-old American twisted a knob on her IV pole and soon fell asleep for the last time.
I had stayed with her and her husband David in Knoxville, Tennessee, for their last three nights at home before they left for Basel. And I spoke to her for the last time about 12 hours before she died.
Cindy had been forced to give up a high-poweredcorporate careerat age 35 and struggled for decades with a handful of painful diseases. She spent much of her time seeking new treatments and advocating for medical research, knowing she might never benefit from her labors.
When it finally became clear that no drug could relieve her intense suffering, she chose voluntary assisted death, a procedure that’s not legal in her home state.
Her dying wish was for me to tell her story, with the hope that it would help the cause of all Americans one day having access to this kind of death with dignity.
You can read the rest of Ryan’s story here.
The Opposing MEGA site has posted a couple of blogs by “Goodelf” under the heading “Untangling the MUS Web.” This now appears to be part of a series–at least, the third was just posted a few days ago. The focus, at least so far, is how proponents of so-called “medically unexplained symptoms,” or MUS, have been selectively citing data to support their perspective.
This is starting to seems like a Dickens novel (in the good way), with a new installment churned out at regular intervals. Anyway, Episode #3 can be read here.